Butterflies in the Vineyard
Support Jessica as She Shaves Her Head!
|Hello friends, family and supporters of lupus patients. |
At the age of 36, I was diagnosed with lupus. I had suffered from a few different auto-immune issues earlier on in life, however no one made this apparently clear that perhaps I had lupus.
I first connected with Molly's Fund through a website called Idealist.org, where I was looking for a volunteer opportunity in medical advocacy. It also allowed me an outlet to share my passion for event planning and project management. Working at Molly's Fund, we had many initiatives to create awareness. One of our fundraisers was called Butterflies in the Park. It only seemed natural while living here in the Napa Valley, we would have an event called Butterflies in the Vineyard.
I began my Benlysta Treatment on Monday December 23, 2013 and as a result of having lupus, I have been losing my hair. I always tell people they need to be in control of their bodies and to not give in to the disease. Lupus does not control me, I control it.
Due to this philosophy, I need to practice what I preach. Because of my hair loss and not wanting to lose more hair on Lupus' terms, I will be shaving my head.
A dear friend said what about a "Pay to Shave" event? She recommended that our event be more interactive. People can donate money and by doing so, in return, they are paying to shave my head. They are also more than welcome to create their own page and have their own fundraising efforts. Our goal is to have more 'beautiful baldies' everywhere. This is more of a virtual event, however the last weekend of the month, will be our 'Butterflies in the Vineyard' where the head shaving will occur. Because we are here in the beautiful Napa Valley, our Butterflies in the Vineyard event will take place at a vineyard.
In addition to raising money for Molly's Fund Some of the donations will be given to our local support group to find a private, comfortable, safe and ADA accessible location. We had our first local support group on Saturday December 21st, 2013 which we followed the Molly's Fund format. I feel so fortunate to have worked for Molly's fund, as it gave me a unique perspective about Lupus.
It's an opportunity to support my fundraising efforts for Molly's Fund, and help support patients who are losing their hair, or to share in the love. I ask you to participate in any which way you are most comfortable. Fundraising efforts will continue for a few months after event.
Your donations to Molly's Fund will be tax deductible and you will receive a receipt for your contribution.
Videos and pictures (before and after) will be available on our events page.
Thank you for sharing yourselves with me!